During the first day of the Medical Informatics Europe (MIE) Conference Åsa Cajander and I presented the paper that was introduced in this blog post. Actually, this was the first presentation held by representatives from the HTO group during this year’s combined MIE/Vitalis event, but certainly not the last – we were active on stage, or as workshop leaders, during each and every day!
This particular presentation was based on a study that was conducted within the scope of a master’s thesis project at Uppsala University by Sara Englund and Anastasia Hansman. The project focused on the Swedish patient accessible electronic health record system Journalen (and hence was tightly connected to the DOME consortium) and more specifically on how nurses see that Journalen has affected their work environment and their communication with patients.
The result of the semi-structured interviews conducted with the nurses at a primary care center in Region Uppsala, first of all showed similar as our earlier interviews with physicians – Journalen has changed the interaction with patients, created an increased workload and created uncertainty regarding when to inform patients of results now that the patients can read even unsigned notes. Even though most of the results were in line with results from our earlier research in DOME, one new theme arose from the interview analysis – the need for new knowledge. Several nurses indicated that education was needed, focusing on how Journalen should be used both by patients and in the clinician-patient relationship. This is an important result, which should be taken very seriously.
All conference papers are published open access, so you can find all research presented at MIE here. You can find the paper that Åsa and I presented here.
Stay tuned for more posts about the HTO activities at MIE/Vitalis 2018! 🙂
Christiane Grünloh, one of the members of our research group, will soon be defending her PhD thesis. Last week, it was time for her to present a draft of her work, which she plans to defend by the end of the year. I jump on the opportunity to write of few lines on her research, which revolves around the Patient-Accessible Electronic Health Record online.
Christiane is one of the researchers of the DOME Consortium, working on the Development of Online Medical records and E-health services. She has been focusing on investigating the perspective of, respectively, physicians and patients on the EHR online – “Journalen” in Swedish. Research about this topic is particularly important since the implementation of Journalen in Sweden has been a very controversial project. Indeed, while patient organizations predominantly were in its favour, caring professionals were, for the most part, against it.
In her research, Christiane was able to look more closely at the reasons behind physicians’ strong opposition to the idea of enabling patients to access their EHR online. She was also able to investigate what was the value of this service from the patients’ point of view. In doing so, she found that physicians and patients had very different perspectives on the topic, and reflected on ways to bridge the gap between those two groups in order to improve the quality of the patient-physician relationship.
You can find Christiane on Twitter (where she is a very active user!) and LinkedIn. If you were attending the Vitalis / MIE 2018 conference in Gothenburg, you maybe also were able to attend her workshop on “Identifying the Need of Self-reported Data and Self-measurements for Diagnosis and Treatment of Cancer”, which she is held together with Jonas Moll, Isabella Scandurra and Åsa Cajander last Thursday.
The DOME Consortium had its own track at Vitalis 2017 and a number of presentations relating to research on electronic patient journals. Jonas Moll has written more on the presentations on his blog – head over there for an update.
With 180 exhibitors and a huge number of presenters Vitalis 2017 was indeed vital. For a first time visitor such as myself it really made the impact of e-health on society tangible.
The exhibitions gave an understanding of the actors in the field, raging from service designers to robotics. (Plus more espresso than a man could drink, though I tried.) The presentations showcased how the same technology was introduced and effected health care on a many different levels. The combination of exhibition and presentation also created a nice tension between the promises of technology and the sometimes more complicated implementations of the same technology.
Given the sheer number of parallell sessions it was impossible to cover more than a few select presentations. The DOME consortium, of which we are a part, had great visibility with a track of its own. Jonas Moll of the HTO-group has written more on this topic. Quite impressive was also the fact that our students had been invited to give their view on the future of health care. Given how professional they were, I would say it looks promising. I also enjoyed the presentation made by Carl Johan Orre from Malmö University on the topic of person centered technology.
I might be a bit biased but what I found really inspiring was the presentations made by our colleagues from Uppsala University Hospital with whom we are collaborating in a number of projects.
Birgitta Wallgren discussed the complexities of large scale implementations in a setting with other ongoing large scale implementations.
Annemieke Ålenius and her colleague presented lessons learned from the unplanned and almost week long downtime for the hospital’s patient journal system. While interesting in itself–for instance the comment that soon staff will have no experience of paper based back up routines–they also managed to convey some of the drama from behind the scenes. Still, it was a good thing that the crisis had a happy ending–thanks to a strong group effort from the whole hospital staff.
Finally Morten Kildal discussed the various strategic paradigms that have succeeded each other as the solution for health care, including the current concept of value centered care. While no doubt new paradigms will come, Morten Kildal did make a solid case for the benefits of the current strategy–as well as the need for relevant data.
In summary all of the three presentations stressed the importance of coordination–between implementations, in crisis or in the patient journey. Yet, what I really found positive for our ongoing collaboration was not only the fact that the presentations were analytical and reflective but that the presenters had a strong humanistic outlook.
This also, is promising for the future of eHealth.